New technologies to help fight the effects of multiple sclerosis (MS)

By Ted Brown, MD

Many representations of the ever-expanding role of technology in our lives depict the dangers of technology as dehumanizing, depersonalizing, and disengaging.  See for example the classic novel, Brave New World, published in 1932, authored by Aldous Huxley.  We all need to use caution in adopting technology that may complicate our lives and increase our reliance on non-human devices for performing our daily activities, outdating skills that we may have been using for years and decades such as remembering facts and calculating numbers.   

Redmond Self-help Group

Find comfort and strength with your peers as you learn, cope, laugh and celebrate the challenges and successes of living with MS. We welcome people of all ages with all different types of MS.  Share your story and learn new ways to live with MS.

Date: 1^st Thursday of each month

Time: 12 to 1 pm

Location: Redmond United Methodist Church

Contact: Sue at Sue_Dahlin@msn.com 

Eastside MS Self Help Group

Come join the ‘No Whiners’ group. The name of the group is exactly what we are all about – no whining! Find comfort and strength with your peers as you learn new information and tips to get more out of your life. Guest speakers from many disciplines and areas of interest educate us each month. We welcome people of all ages with all different types of MS. 

Date:   2nd Wednesday of each month

Time:     9:30am – 11:15am

Location: Swedish Hospital (Issaquah)

2nd Floor Conference Room

Kirkland MS Self-help Group

Find comfort and strength with your peers as you learn, cope, laugh and celebrate the challenges and successes of living with MS. We welcome people of all ages with all

different types of MS. Share your story and learn new ways to live with MS.

Date: 3rd Thursday of each month

Time: 7:00 - 9:00 p.m.

Location: Evergreen Hospital - Tan Rm. 121

12040 NE 128th St.

Kirkland, WA

Contact: Karen: karcu@hotmail.com

Susan: 425-822-0462

Neurological Exercise Group

Presented by Rehabilitation Services

Gentle stretch and strength exercises done in a chair and standing. For patients affected by neurological disorders such as Parkinson’s, Stroke and Multiple Sclerosis.

First Quarter 2017 Class Dates:

Jan. 3 – Jan. 31
Feb. 7 – Feb. 28
Mar. 7 – Mar. 28

Neuro-Nutrition Class

An interactive class and discussion group for people who live with Parkinson’s Disease, MS and other neurologic conditions. The focus of these classes will be to learn more about how to: Plan a good basic diet that provides the nutrition your body needs Understand the calories needed to achieve or maintain a reasonable weight Develop eating strategies to prevent GI issues like constipation and slow digestion Schedule meals for best medication action Protect your energy by planning and preparing meals

From the Ground up strength and flexibility

The exercises take place on the ground but they benefit you in all

walks of life. Geared toward those with neurological challenges

including Multiple Sclerosis, Parkinson’s Disease and post-stroke

recovery this weekly mat-oriented class includes elements of yoga,

tai chi, dumbbell exercise, exercise bands and more.

Fall Prevention: Take Action!

Each year, millions of adults ages 65 and older fall. People with disabilities are also at high risk. Falls can cause moderate to severe injuries, such as hip fractures and head traumas, and can increase the risk of early death. Fortunately, falls are preventable!

Men's Group

Feeling like your world is a little out of control? Your body and brain are in a conspiracy not to work together and make your life miserable?

Martin Luther King, Jr. said, “We may have all come here on different ships, but we’re all in the same boat now.”

Come join other men with neurological concerns to explore what is happening to our minds and bodies as we look for ways to cope and to thrive in spite of our limitations.

Laughter Therapy

Effect and efficacy of Laughter Therapy (LT) in people with central nervous system disorders.

Description

The EvergreenHealth Multiple Sclerosis Center is conducting a prospective investigation of the effects of Laughter Therapy (LT) on perceived stress, self-efficacy, mood, and other wellness measures in people with the following neurological conditions: Multiple Sclerosis, Parkinson’s disease, Alzheimer’s disease, amyotrophic lateral sclerosis, Huntington’s disease, Post-Stroke, Brain Injury, and Spinal Cord Injury.

MIRROR STUDY: Urinary urgency trial

MIRROR STUDY

ClinicalTrials.gov Identifier: NCT02086188

Pilot Study of Mirabegron and Behavioral Modification Including Pelvic Floor Exercise for Overactive Bladder in Multiple Sclerosis
Description 
Investigator: Ted Brown, MD
For More Information: Shalom Kilcup - 425.899.5369 SEKilcup@evergreenhealth.com

Tecfidera's impact on gut microbes

Click for printable flyer

Tecfidera IIT

Measuring the Impact of Tecfidera on the Gut Microbiota: Does a Change in the Gut Flora Correlate with Gastrointestinal Disturbances Following Therapy Initiation?

Description
The primary objective of this pilot study is to determine whether a measureable change in bacteria represented in the gut takes place following the initiation of dimethyl fumarate, also known as Tecfidera. This study will assess whether a measured change in gut bacterial flora corresponds to the risk of developing gastrointestinal disturbances and of changes in mood state.

Post injection site pain study

PEG-Thermal IIT

ClinicalTrials.gov Identifier: NCT02490943

A pilot study of warm and cold compress to reduce injection site erythema due to peginterferon-beta-1a in multiple sclerosis.

Phase IV

The MS Center is enrolling research volunteers for a drug study in MS. A research trial using thermal methods to reduce redness and pain caused by peginterferon-beta-1a (Plegridy) injections.

Exercise and Cognitive Performance in Individuals with Multiple Sclerosis

A growing body of studies has been published recently looking at the impact of exercise on cognitive symptoms in a number of chronic conditions, including multiple sclerosis.  

A recent pilot study presented by Dr. Brian M. Sandroff at the 2016 Annual Meeting of the Consortium of Multiple Sclerosis Centers, provided intriguing results on treadmill walking and its impact on cognitive measures and aerobic fitness.  

Tools & Technology to Improve Your Life

Exciting advancements in technology and medical equipment offer the ability to enhance and improve the lives of people living with multiple sclerosis. Many people with MS experience various changes in physical and cognitive function. Mobility, daily activities, memory, concentration and organization can all be affected. You can compensate for these changes by using some of the excellent tools that are now available. Join us for an informative discussion of the latest tools, equipment and technology that can improve your physical and cognitive function. This workshop will teach you how to:

Nutrition and Multiple Sclerosis (MS)

Evergreen Neuroscience Institute hosts a cutting-edge workshop on 

The role of nutrition in the development of MS and treatment of MS has been a topic of great interest for decades, but much is still unknown. 

On July 23, 2016, EvergreenHealth hosted the third annual “Food for the Brain – nutrition and MS” workshop, sponsored by the National MS Society and pharmaceutical support. This annual workshop serves to answer questions about the latest research in nutrition that is relevant to MS. 

Therapeutic Yoga for MS

Build confidence, resilience and stability through this therapeutically designed class specific for people living with MS. Increase your flexibility and calm your nervous system with this safe and compassionate program. Our therapeutic teacher team’s extensive adaptive yoga training and experience will facilitate your understanding of how to restore, renew and regenerate your energy. Join us for a heartfelt exploration into health, wholeness and well-being. Class is accessible for all levels and capacity.

Kirkland MS Self Help Group

Find comfort and strength with other spouses and partners, as you learn new resources and make new connections.   Share your story and learn new ways to meet the challenges MS brings to a relationship. 

You can do something to improve bladder function…

Participate in MS research

The *MIRROR STUDY* is now enrolling patients with MS and overactive bladder. 

The EvergreenHealth MS Center is looking for subjects with multiple sclerosis (MS) and overactive bladder (bladder

Redmond Self Help Group

Find comfort and strength with your peers as you learn, cope, laugh and celebrate the challenges and successes of living with MS. We welcome people of all ages with all different types of MS.  Share your story and learn new ways to live with MS.

The role of nutrition in neurological health

Revitalize your nutritional health with a lively discussion of the latest scientific findings on MS and nutrition, practical advice regarding healthy eating, strategies for maintaining a healthy diet in the context of challenging MS symptoms, and the importance of exercise in promoting an overall healthy lifestyle.

Special Guest Speakers

Laura Piccio, MD PhD

Neurologist and Physician Scientist; on faculty at the Department of Neurology at Washington University, St. Louis

Dr. Piccio’s research integrates clinical and research aspects related to MS and currently focuses on the role of diet in modulating immune-inflammatory responses as well as the complex interplay among

B Cell Therapies in MS: Entering a New Age in MS Care

A novel approach to targeted immunotherapy, started nearly 2 decades ago, is now bearing fruit.  The role of antibodies in the pathology of the MS plaque has been a hot area of basic research.  Up until recently, MS was thought to be fundamentally a disease driven by the abnormal regulation of a type of immune cell called the T cell. 

From the Ground up strength and flexibility

The exercises take place on the ground but they benefit you in all

walks of life. Geared toward those with neurological challenges

including Multiple Sclerosis, Parkinson’s Disease and post-stroke

recovery this weekly mat-oriented class includes elements of yoga,

tai chi, dumbbell exercise, exercise bands and more.

Therapeutic Yoga

Build confidence, resilience and stability through this therapeutically designed class specific for people living with MS. Increase your flexibility and calm your nervous system with this safe and compassionate program. Our therapeutic teacher team’s extensive adaptive yoga training and experience will facilitate your understanding of how to restore, renew and regenerate your energy. Join us for a heartfelt exploration into health, wholeness and well-being. Class is accessible for all levels and capacity.

Fall Prevention: Take Action!

Each year, millions of adults ages 65 and older fall. People with disabilities are also at high risk. Falls can cause moderate to severe injuries, such as hip fractures and head traumas, and can increase the risk of early death. Fortunately, falls are preventable!

Are you having redness and pain from MS medication injections?

PEG-Thermal IIT

A pilot study of warm and cold compress to reduce injection site erythema due to peginterferon-beta-1a in multiple sclerosis.

Phase IV

The MS Center is enrolling research volunteers for a drug study in MS. A research trial using thermal methods to reduce redness and pain caused by peginterferon-beta-1a (Plegridy) injections.

MS Center at EvergreenHealth enrolling for Tecfidera trial

The MS Center at EvergreenHealth is now enrolling for a research trial to study the possible effects of Tecfidera® (dimethyl fumarate) therapy on gut microbiota of patients with Multiple Sclerosis.

This study will also explore the influence of change in gut bacteria on other important aspects of MS, including disease activity and symptomatic issues such as mood.

Men's Group

Feeling like your world is a little out of control? Your body and brain are in a conspiracy not to work together and make your life miserable?

Martin Luther King, Jr. said, “We may have all come here on different ships, but we’re all in the same boat now.”

Come join other men with neurological concerns to explore what is happening to our minds and bodies as we look for ways to cope and to thrive in spite of our limitations.

Neurological Exercise Group

Presented by Rehabilitation Services

Gentle stretch and strength exercises done in a chair and

standing. For patients affected by neurological disorders such

as Parkinson’s, Stroke and Multiple Sclerosis.

No Whiners

Issaquah MS Self Help Group

Come join the ‘No Whiners’ group. The name of the group is exactly what we are all about – no whining! Find comfort and strength with your peers as you learn new information and tips to get more out of your life. Guest speakers from many disciplines and areas of interest educate us each month. We welcome people of all ages with all different types of MS. 

Kirkland Care Partner Support Group

Find comfort and strength with other spouses and partners, as you learn new resources and make new connections.   Share your story and learn new ways to meet the challenges MS brings to a relationship. 

Date 4th Thursday of each month

Time 6:00 - 7:30 PM

Location Evergreen Hospital – Tan Rm 119
                12040 NE 128th St.
                Kirkland, WA

Kirkland MS Self-help Group

Find comfort and strength with your peers as you learn, cope, laugh and celebrate the challenges and successes of living with MS. We welcome people of all ages with all different types of MS. Share your story and learn new ways to live with MS.

Date: 3rd Thursday of each month

Time: 7:00 - 9:00 p.m.

Location: Evergreen Hospital - Tan Rm. 121

12040 NE 128th St., Kirkland, WA

Contact: Karen: karcu@hotmail.com

Susan: 425-822-0462

Tackling progressive MS: An array of research is putting new treatments on the horizon

By Ted Brown, MD

Illustration by Bruce Blaus copyright via Wikipedia 
Creative Commons

In our last E-zine, we discussed changes in the way that we categorize different types of MS.  We still use the classifications of progressive disease, including Primary Progressive MS (PPMS, progressive disability from onset) and Secondary Progressive MS (SPMS, progressive disability after initial relapsing course).  With this issue, we are going to review some of the exciting work being done in developing treatments for progressive MS, including PPMS and SPMS.

Multiple Sclerosis Workshop: Optimize Your Day-To-Day Function Multiple Sclerosis Workshop:

Learn how you can improve and preserve your mental and physical well-being

Put your well-being first, and join us to learn about effective strategies to improve day-to-day function, useful rehabilitation tools, and how to put these tools into daily practice. This program will include a panel discussion on key topics such as cognitive and physical fatigue management, exercise and mobility, practical approaches to improve function and stress management.

Fall Prevention: Take Action!

Each year, millions of adults ages 65 and older fall. People with disabilities are also at high risk. Falls can cause moderate to severe injuries, such as hip fractures and head traumas, and can increase the risk of early death. Fortunately, falls are preventable! Be proactive by attending this valuable class! You will learn how to:     ▪    Stay active and independent     ▪    Minimize risk from factors such as weakness, poor vision, and medications     ▪    Organize your environment to reduce risk     ▪    Safely manage home and self-care activities     ▪    Stay strong and physically active

From the Ground Up, Strength and Flexibility

The exercises take place on the ground but they benefit you in all walks of life. Geared toward those with neurological challenges including Multiple Sclerosis, Parkinson’s Disease and post-stroke recovery this weekly mat-oriented class includes elements of yoga, tai chi, dumbbell exercise, exercise bands and more. Participants will be supplied with all of the necessary equipment including the exercise mat. Due to the nature of the class all participants must be able to get down to their mat and back to their feet again independently or at least with the assistance of a chair.

Therapeutic Yoga for MS

Build confidence, resilience and stability through this therapeutically designed class specific for people living with MS. Increase your flexibility and calm your nervous system with this safe and compassionate program. Our therapeutic teacher team’s extensive adaptive yoga training and experience will facilitate your understanding of how to restore, renew and regenerate your energy. Join us for a heartfelt exploration into health, wholeness and well-being. Class is accessible for all levels and capacity.

Men’s Group

Feeling like your world is a little out of control? Your body and

brain are in a conspiracy not to work together and make your life

miserable?

Martin Luther King, Jr. said, “We may have all come here on different

ships, but we’re all in the same boat now.”

Come join other men with neurological concerns to explore what is

happening to our minds and bodies as we look for ways to cope and

to thrive in spite of our limitations.

Kirkland Care Partner Support Group

The Kirkland Care Partner Support Group meets the fourth Thursday of each month

Time: 6:00 – 7:30 p.m.

Location: Evergreen Hospital – Tan Rm 119
                 12040 NE 128th St.
                  Kirkland, WA

Communication Group

Improve your communication skills in a relaxed, welcoming environment with others who have communication difficulty from stroke, Parkinson’s or other neurological changes. Facilitated by an Evergreen speech-language pathologist. Light snacks and beverages provided.

Second Thursday of every month, 11:00 a.m. – Noon

$5 per series

Location

EvergreenHealth Campus

DeYoung Pavilion

2nd Floor, Rainier Room

12039 NE 128th Street

Kirkland, WA 98034

Registration

Class size is limited.

Pre-registration required.

For registration and directions

call 425.899.3000

Monday - Friday, 7 a.m. - 7 p.m.

or register 24/7 online at

www.evergreenhealth.com

Parking

Free parking is available

in the surface lot and the

underground parking garage at

DeYoung Pavilion.